Yesterday I paddled out with a big ball of fear in my stomach, I hadn’t surfed in what felt like months. All I could think about is how bald and ugly I was , how out of shape my arms were . I kept thinking everything was wrong . I couldn’t figure out where to sit to catch waves , and was constantly paddling against the current . Why is everybody looking at my head ? Why can’t I catch a single wave ?? I’m such a kook!! So I tried again, went out today. I made an effort of letting go of any expectation . I figured worse comes to worse I’ll just float in the water and swim around . I tried redirecting my fears and thoughts towards some gratitude..thank you ocean .. I kept repeating .
Slowly, everything just clicked. Everything felt fluid and natural. I forgot about my looks, my body, my anxieties.. I couldn’t stop smiling to myself. Rode wave after wave , just fell in love with the water, the ocean all over again🌊
I can’t wait til more sunny days like these to make my little hairs grow.. letting go of all judgement ..manifesting more and more little sprouts🌈🌱💙 #alopeciaareata#autoimmunedisease#selflove#manifest#healing#hope#alopecia#loveyourself#baldgirl
Throwback to over a year ago, madness 😩
Had a few questions as to why I’m not posting much without my hair recently and it’s actually for a really stupid reason, my real hair grows back insanely fast and looks patchy asf and I don’t have time to shave it 😂 in fact the past few weeks is the most my hair has grown in a super long time, I’m even getting eyebrows and eyelashes 🤷🏻♀️ I’ve had all strains of alopecia, it started as mild Areata progressed to Totalis and had Universallis for a while, that one was my fave because I didn’t have to shave my legs 🌝✌🏼 at the moment I’m a fluffy egg whereas in the photo you can see there’s only one small patch on my head where hair was growing, this condition is a weird one I promise you 😂 I’m never gunna sit around waiting for my hair to grow back because I might be waiting for a day that never comes but I’m honestly fine with that, I’ve grown to accept it as something that’s a part of me. I always see the world as you attract what you put into it, negativity will only bring more negativity. In the grand scheme of things if Alopecia is the worst life has to throw at me then I’ve got it pretty damn easy (that’s not a challenge for life to kill me off lol) but yeah 2019 about to be an exciting one we even have an emoji now 👩🏼🦲🌝 the army is strong 🥚
64 9084 days ago
Kristi Tavenner, uma sobrevivente do câncer de mama, e Rose, sua filha de 7anos que tem uma doença autoimune relacionada à calvície (alopecia), fizeram um inspirador ensaio fotográfico para mostrar o orgulho que sentem de suas aparências.
Foto: Kellie Rose (2018)
Quatro sessões de quimioterapia
E os seios tristemente removidos
Kristi celebra nova vida - novo dia
Procura esquecer os tempos idos
Rose, a filha, também é só alegria
O riso lindo esbanjando vitalidade
Juntas, mostram numa fotografia
Que viver vale a pena de verdade!
64 446510:49 PM Jan 11, 2019
#10yearchallenge well I decided to play. I know a lot of people look back and cringe when looking at old photos. When I look at these pictures, I see growth. I see a girl who once was so afraid of her bald head, so afraid of what people might think... •• I tried so hard to fit in I didn’t notice how much of myself I had to sacrifice to do so. And I learned this: losing yourself to normality is not worth the struggle. •• I am so much happier now than I was wearing I wig. Accepting my body for everything it has brought me through and the life it has provided me has been such a gratifying process. And I continue to be grateful for what lays ahead. •• Ten years ago a very different Kylie looked in the mirror and hoped no one would notice that I wore a wig. Today I look in the mirror proud of what makes me different and you know what, I HOPE people notice.
Exactly one year ago today I came out about my struggles with alopecia. I lived a long time in secret and in fear. I was afraid that I would lose my fans and in turn, lose my career. To me, the risk of losing everything was worth living honestly and being free from my prison. This has been the first year where I have been open and living and performing in my truth. In this year, I moved to Los Angeles, a place where image is everything. I perform in Hollywood without wigs and it can be very challenging to go out and present something that people don't expect. The response has been really good but I'm still battling years of muscle memory and emotional pain. I do what I do because I believe that beauty is truth. That is what I hold in my heart and what I teach my students, but I think it is always harder for the teacher to teach themselves. I am doing a lot of work on the inside to give the world my best outside. Thank you all for being with me and supporting me in this new life.
If you want to see the full video, you can check it out on my IGTV.