One year today since my transplant and everything is looking A OK👌🏻 a major milestone, BIG celebrations all round. 🎉🎉🥂🥂🎂🎂
51 3742 days ago
This morning I woke up to a message from my iPhone saying ‘on this day last year’ with the attached photo 😱. That’s a Hickman line coming out of a vein in my chest and on this day last year it was put in, ready to receive 8 days of pre transplant chemo the next day (second photo) in preparation of receiving my future stem cells the day after that. The Hickman line insertion was painful and alien and meant for the next four months whilst it remained in showering was torture. That and the fear one of my kids would yank it out. Trying to wash around those tubes coming directly out of my veins was so hard because of it’s super awkward position. It’s so often small things we take for granted, like the feeling of running water on your head that I was so conscious I was missing in those months.
As I approach my one year post transplant anniversary - a major milestone - looking at photos like these from treatment makes my stomach turn 🤢. To think it was just year a ago even more so.
This post is in aid of #bloodcancerawarenessmonth coming up in September, to try and help raise awareness of blood cancers and what treatment actually entails.
This weekend just gone, after a very busy week at work, I was finally able to take in - and celebrate with these two cool customers 😉 - the fact that I received my second MRD negative results last week 🎉🎉. Whilst I have technically been in remission for quite some time now, the news of these results (the science of which I won’t try to explain without a medical professional present) means we can finally breathe a little easier, worry a little less and begin trying to plan for our future again instead of living in the day to day and only looking at tomorrow.
I can only say a huge thanks again to my donor @anthonynolancharity@dkms_uk for giving me a second chance and to @kingscollegehospital for my continued care, under the watchful eyes of the incredible #NationalHealthService .
The anxiety around results days will never go away but long may results like these continue! 🙏🏻🙏🏻💪🏻💪🏻