Hello all. Today, I started my new medication... a beta blocker to try to get my POTS ❤️ under control. I’m so happy I got this appointment with my cardiologist today. He’s really great! I brought up my concerns of constantly being out of breath, dizzy, and my heart rate reaching 198 (some days as high as 210) even with my medication. I also brought to his attention the amount of nausea I have... literally all the time! He said it’s more than likely cause by all of this and he will see me again in two weeks and hope everything is a little more controlled by then! We are moving across the country in a little less than three weeks!! 🏡 I’m praying for the energy and strength to pack, clean, and move! Beta blockers for better days... 🙏🤞 #betablocker#pots#spoonie#betablockersforbetterdays#update #❤️ #potsie#betterdays
A post from my girl:
I just want to take a minute to commend Piper for her incredible work today. Being off my infusions the last few weeks has been hell. My symptoms are worse every day and surgery to fix my port is still a week away. Today, my heart rate was through the roof. Piper alerted, but since someone was giving a speech, I waited to respond. I waited to long. I felt the oncoming syncope episode during class and decided to try to get to leave. I was too late and the moment I stood up, I fainted. In front of 78 people. This was the first time this professor had seen this. She panicked and grabbed Piper as people rushed toward me (I was later told all this). Apparently, someone yelled at her to let go of Piper. The moment she did, Piper came to my aid. Immediately starting DPT and tactile stimulation. She did everything she was taught perfectly. I came back to, and I’m okay, just sore and humiliated.
But I have to commend this dog. To task in front of 78 people. In front of people rushing toward me. After having first been restrained. I’ve never been more proud. I have had days I’ve doubted her abilities. Worried I didn’t train her enough. But today she showed me just how brilliant she really is. Sure I post tons of cute and funny photos on here. But at the end of the day, she is my life saving medical equipment. And I couldn’t be more proud to have her at my side.
Oh and don’t worry. She got LOTS of love and treats after that event.
To be or not to be... that is the question. I love pottery. If I had the means to do it everyday I would. So why does it feel so scary, so challenging, to decide whether or not I want to be an artist. And I know what you’re thinking - I am an artist! I mean an artist in the sense of marketing myself as one, presenting myself as one, and thus taking this hobby to the next level. How do I begin? Where do I begin? Do I have the time, mental space and energy, or desire to create a brand for my product? Do I have a clear vision of what my product is? These are all the questions (and more) rolling around in my mind. As the cabinets in my kitchen fill with pottery more and more, I know I need to start making some decisions about the art I create and what I should do with it all AND how I can continue to support the hobby I love. Or set it aside? That doesn’t feel right! How do you know if you are ready to claim your artist status? What are your first steps? To be continued... #pleaseadvise#pottery#chicagopottery#chicagoceramics#ceramics#clay#clayallday#mytherapy#pots#mudslinger#makeart#aspiringartist#tobeornottobe#art#artist#claybowls#wallart
1 11an hour ago
I'm happy to have had some relaxing days. Ive focused on self care, nutrition, and unwinding. Bandit seemed to have taken notice, so little man has decided that he must remain in my arms at all times. Instead of sleeping on the windowsill or outside my bedroom door, he's decided my chest is a far better bed 😚😚😚 we've had some quality time, and I've been very pleased. 🍃🍃🍃🍃🍃🍃
Grandpa did great in his surgery, my dad has been really chill, Ty finally got off work so we could talk!!! And I'm finishing up all my shoe paintings since my hands aren't shaking as bad (THANK GOD FOR GATORADE!). The diuretics have helped my water retention, too!!!! (I'm taking below the recommended dose because I need them, I promise I'm being safe and this is unrelated to my ED). I'm feeling so much more hopeful about my physical state with at least SOMETHING to improve my symptoms. Compression socks, my cane, all the Gatorade I can stomach, hydrating, light physical activity even when I feel like death, and some wonderful POTS advice from @ungluing_stigma , I have seen a slight reduction in symptoms. This...honestly makes me so happy. I've been getting gradually worse 2 years, and now... It's steadied and allowed me to have a couple more spoons on most days!
I'm feeling....relaxed. 🌼🌼🌼🌼🌼🌼
1 13an hour ago
My baby. Having a lot of stress and anxiety this week about a lot going on in my life. About to start a 30 day heart monitor to hopefully give us some answers about the heart problems/extreme dizziness and passing out I have been having. My cats are amazing and I cry with them both on top of me, loving me. They are always there together when they know I am worried and stressed. #truelove#pots#edssucks
0 10an hour ago
Dry shampoo is one of my favorite products- I try to remember to spray it before I go to bed so it absorbs oil while I sleep 💁🏼♀️ What product or energy saving tip is your favorite? .
So this week, I went on a 4 day road trip/vacation thing with some of my friends. And gosh it was really stressful a few different times so I’m just going to talk about it becuase I haven’t posted in a while. So it started out with a car ride (about 6-8 hours) to New York. It was fun I slept through a few hours at least so it seemed a lot less then it was. And we stopped at Walmart for groceries and I used a Motor chair thing because my ankles were bothering me a little bit. I then had a panic attack almost the whole time because It made a horribly loud beeping sound when you went in reverse, so I refused to put it in reverse and it was kind of a mess. But then we went and we had fun for 3 days until Sunday night when I was being an idiot and fell between two cots and smashed my arm into a metal rod and probably pulled a few mussels on the way down too. But the car ride back in the morning was soooo bad. I was extremely nauseous the whole time for no reason and I couldn’t eat anything without fear of vomiting. And my arm hurt and it was so bad. Anyway so I got home safely and I went to school for only one period today before I had a mental breakdown and had to go home but I’ll live I guess and I’ll be ok. •
Had an amazing week in Austin this last week! Went to the Green Galla and visited the Chive headquarters like we did last year and we had a blast! I had to rest for a couple days before and now that I’m home I’ll probably be out of commission for a week or so but it’s worth it! We also have some exciting things coming up soon so stay tuned 💕
Many of you may not know this, but I live with chronic illness. I suffer from chronic migraines and headaches and have a condition called POTS (Postural Orthostatic Tachycardia Syndrome), a form of Dysautonomia or autonomic dysfunction, which basically means my autonomic nervous system doesn’t work properly. The autonomic nervous system controls all the “automatic functions” you don’t think about like breathing, heart rate, blood pressure, body temperature regulation, digestion, sweating, etc. When you have a malfunction in this system, it creates all sorts of problems and symptoms, many of which I deal with daily. Some of these daily symptoms include but are not limited to: fainting, near syncopal episodes, head rush while standing up, migraines or headaches, standing intolerance, difficulty regulating body temperature, chest pain, digestion issues, etc.
Next month (October) is Dysautonomia Awareness Month and I thought this would be the perfect time to launch my new blog about POTS. So far, a brief story of my life with POTS is on the site as well as one post. I plan to post a bunch next month for awareness, but may do a couple before then as well. I’ll be posting blog articles about POTS and what it’s like to live with it, manage it, etc. One of the nicest things you can do as a friend or family member of someone with POTS is learn more about it to gain better understanding. But please don’t offer unsolicited medical advice because chances are we have already tried it, know about it, or can’t do it. I’d love it if you checked out my blog and if you want to follow to learn more, you can become a “member” to comment, like, and I think you’ll get emails when a new post is ready.
A beautiful, organic hand shaped planter, the Cortina works well in both classic and contemporary gardens. The tall, slender shape makes them ideal as a standalone planter or even as an unplanted statement to accent different styles of architecture. Available in two sizes.
Godmorgon söndag och alla ni rara som följer mig där ute. Söndagar är för mig numera en tid för avkoppling och en chans att vara med familjen. Så har det inte alltid varit...för under största delen av mitt liv har söndagar inneburit ångest och oro över veckan som varit och vad som komma skall. För mig har har det också varit livsavgörande att byta det negativa och ångestladdade mot det positiva och energigivande men det har krävts mycket arbete må ni tro. Ha nu en skön dag alla och njut för det är vi alla värda♥️!⠀
🇬🇧 Good morning Sunday and all you nice people who follow me out there. Sundays are for me a time of relaxation and a chance to be with my family. This has not always been...for most of my life, Sundays have caused anxiety and worry for the past week and what's coming. For me, it has also been crucial to change this negative way of seeing things and instead starting to be positive, but it has taken a lot of hard work. Have a nice day all and enjoy it, we're all worth it ♥️!⠀