Another visit at the physio in the books!
Aaaaaaanyway, so the physio is happy, I’m sore, in ownership of new belongings, and taught yet another few exercises to add to my daily routine. 🏋🏼♀️ (<— who am I kidding with that emoji 😂) Lots of nerve pain, and lots of over reactions from my body - it’s being a real drama queen 🙄
But, in order to walk 1000 miles, you have to start with a single step 👣 .
Did some training at Lowe’s to help us ease into training again! We kinda took a week off from PA training after a week of extreme PA training. Quincy was definitely off her game, but was generally well mannered. She mainly just got distracted by people cooing at her and she didn’t seem to have her listening ears on. So we took it slow and just worked on basics and focus work! We also took a peek at the Halloween decorations and Quincy couldn’t care less 👏🏻 I was also happy about how well our set up is working, @rugersropes traffic leashes are the perfect length for when I want more control. I also love how our @caninecradle cape can hold all the things, especially my keys which get lost if I put them in my bag.
1 1746 minutes ago
I’m finding more and more that the people I work with that have challenges like ADHD, anxiety etc., suffer less from the conditions themselves and more from their mindset about what it means to have those conditions.
Too tired to smile 🤷🏻♀️ -
3/4 appointments done for this week.
First appointment was with cardiology. I got a prescription for a wheelchair so I’m going to be starting that process soon. Any advice would be much appreciated. Also should be starting home healthcare but I’m nervous about it so not totally sure. -
Second appointment was post op to make sure my port incision is healing well and it is! The surgeon was surprised that I actually had glue left on. -
3rd appointment is my infusion appointment. Currently watching the 100 here and it’s pretty good! -
4th appointment is tomorrow and will be my first time back at aquatherapy since getting my port placed. -
All in all a pretty busy week but I’m happy I’ve been able to get things done lately! #choosehappiness
Back at my second home today🙄 Rheumatology appointment with Dr Kazkaz who’s been so supportive throughout my EDS journey. Nothing much has changed apart from waiting for a referral to a rehab, and although her clinic is usually diagnostic then discharge, I’m fortunately being kept on👍🏼
1 14an hour ago
ugly facts of the day:
1. my chin has many, many spots right now
2. I dislocated my arm twice today, once when I washed my hands and another time when I put on my shirt this morning lol
3. I have spent a lot of the day lying in bed because my POTS is bad watching other people's takes on why social media is so bad for your mental health... on social media, and now I'm posting about it on social media
4. my hair looks like I've never brushed it in my life (I haven't)
5. if you are reading this and have been feeling bad about yourself because of everyone looking and seeming perfect on this app, I hope this makes you feel better 💜
2 26an hour ago
#cannadifyi💯💚 Happy Tuesday everybody! #MrBoneJangles says #fujeff and #WakeBakeAndMedicate#WakeAndBake#Dab#dabndance ... I’m feeling better today but still a bit under the weather.
It’s true. I do love Mary Jane. How could you not love something that gave your life back and then continue to give you quality life.
I have never experienced this level of quality life. I was born with genetic #EDS I was born in pain with so many conditions that were not caught and never diagnosed/ treated properly by the white coats.
Diagnosis of dysautonomia and Ehlers-Danlos syndrome did not come from a doctor with a degree.
I did decades of research and finally met the right person. I research like me from California, this woman told me she thought I had Ehlers-Danlos syndrome and Dysautonomia.
She was right on both counts. She save my life. I couldn’t save her’s.
So I’m always trying to save other peoples lives or at least trying to help you live a happier healthier life.
I believe a happy life first comes from having great health. Body mind and soul. ...
The difference in my life is like night and day.
I wish Jeff would come talk to me and @survivingstagefour@melissab369@ban_gieloves_420@email@example.com@jujubean7898@lovewintersky@striatedprism
Every day ordinary people with real lives medicate responsibly and successfully with #cannabis ...
Jeff Beauregard Sessions The attorney general to the united states of America. This dinosaur sets the tone as he believes that people medicate with cannabis are drug addicts and that marijuana is a gateway drug to heroin.
#fujeff from all of us who rely on cannabis to stay alive.
Guys i have had lung pain for two years now. I want to see if a mask would help. What do you use if you do. I can not do medical masks because of the feeling it freaks me out. So yeah. Is there anyone on hear that makes then. If so please comment the shop.
5 103 hours ago
“Impatience is having an expectation before actually earning it.” - Vincent Pugliese
For distances of a few 100 meters or more, I use a wheelchair: more specifically, an electric wheelchair. This is because my wrists and arms don't have the strength to push myself forward in a regular wheelchair. Although I don't like it, this wheelchair gives me a part of my freedom back; it allows me to move around freely without having to depend on others. I hate it when my battery suddenly dies and I have to be pushed.
This causes a lot of frustration for me because it means I’m not able to make my own choices and decide where I want to go.