I never really knew how strong and capable I was until I had you!!! I never knew how hard I could fight and how long I could endure the struggle. Before I had you, I never knew how beautifully different the world could be through someone else's eyes and perspective. Before I had you, I never knew what true unconditional love was. Before I had you, I never knew how fearless and determined I could be. My life changed the day I had you....my world changed, my self perspective changed. Before I had you, I did not know how indestructible I was, before I had you, I was not completely me.
Love this photo of Mer and Abigail, twinning in their @redsox gear! #friendship#foxg1 ❤️❤️ If you missed it, click the link in our bio and read our interview with Abigail’s mom Jennifer who is the Director of Family Advocacy for the @iff_foxg1. She shares insight into FoxG1 Syndrome (which both Mer and Abigail were born with along with no more than about 350 other people in the world) and a some of the things that would make the world a more inclusive place for this community. (PS: Would be *amazing* if you could share, @redsox!! ❤️ ⚾️ It’s FoxG1 Awareness Month.)
Meet Stephanie von Stein & Dr. Mark Schusterman, 2019 KNOWAutism Ambassadors!
Stephanie and Mark are advocates for families impacted by autism because a few members of their own family are affected. They know it can be difficult for families to find the right therapies, providers, and treatment approach:
"First it's finding the right OT, Speech, and ABA therapies, and working with developmental pediatricians. But then families have to navigate the best ways to integrate these therapies from home to real life settings. We are passionate about helping families find what works for them. We support KNOWAutism because of their tireless commitment to helping everyone affected with autism in Houston. We are especially proud of their work after Hurricane Harvey, assisting families impacted by the devastating floods." 🔹
Stephanie maintains a lifelong career in luxury retail, fashion, and jewelry, through which she has touched many arts, charity, and philanthropic organizations. Stephanie is an avid advocate for domestic violence survivors and has worked with Crime Stoppers, AVDA (Aid to Victims of Domestic Abuse), and DAYA. She has also been active with the Parish School, Carruth Center, and the Joy School in Houston.
As a cosmetic surgeon, Dr. Schusterman has held many distinguished academic and professional appointments, including at the University of Texas M.D. Anderson Cancer Center, where he held the prestigious Charles M. McBride Professorship in Surgical Oncology. He has served as visiting professor at many distinguished universities throughout the U.S. and Europe.
Would you like to join Stephanie and Mark in supporting our work? To learn more about the #AsIAmGala on February 22, go to . You can also participate in our #AsIAm campaign to promote #autismawareness and inclusion! Get all the info you need, including the Supporter Toolkit, at
0 82 hours ago
I got this message last night and it made me smile and cry at the same time. I’m so happy our story can help others. I’m also thankful so many places are providing families with these sensory friendly opportunities. 💙
0 212 hours ago
There’s a Bible verse 📖(and probably a gazillion quotes) that says something along the lines of “Knowledge puffs up.” Our society today (and we as individual members) likes to KNOW things. 🙋♀️ Sharing what we KNOW makes us feel good about ourselves. Feeling like we KNOW a lot makes us feel good about ourselves (and sometimes better than those pitiful others who don’t KNOW as much as we do). 🙄 Often when we KNOW things and others don’t agree with us, we get annoyed or angry. Or at least, we discount what they say because we KNOW better. I see this in education. In business. In health. In politics. In families. In church. In EVERYTHING. 🤦♀️ The problem with thinking we KNOW so much is that we are not always right. And we miss out on opportunities and things that could help us and others because of our limiting beliefs. 😬
By now you are thinking, Aubri, I KNOW all this 😂 but why the heck are you posting this with a picture of Finley wearing a hat? 🧢
If my Mimi had told me she was making Finley a hat, I would have told her not to. I would have told her I’ve never gotten Finley to leave a hat on her head for more than 3️⃣ seconds. I would have told her I KNOW my child and it was a pointless endeavor. 👎
Well, if you know Vera Wunderlich you KNOW she often does what she wants and doesn’t ask. 😂 So she presented Finley with this hat and I thought, “Wow, that’s nice but I KNOW she’ll never wear it. Poor Mimi.” 🤦♀️ But I was wrong. Finley decided she loved the hat. She wore it for hours. She looks absolutely adorable and her head was warm. And none of that would have happened if I had been able to tell Mimi what I thought I knew. 🤐
Wearing or not wearing a hat is relatively trivial, but being puffed up with all we think we KNOW and missing out on what others can teach us—on what God can teach us—is far from trivial.
#throwbackthursday Keira’s first day of Kindergarten at Rainbow School in Solihull, England
4 1189 hours ago
A long, but truthful story that makes me feel naked but needs to be told and yes it’s about shoes;
I wish that when I looked at this first picture, I saw it for what it simply was..some cute baby shoes. But instead I see the story behind the picture; I see the tears pushed aside as I refused to shed any in the store, I see my baby kicking around as I tried them on him, I see myself taking pictures and envisioning all the cute outfits they’d match, i see the guilt that’s felt for wanting to cry over something as simple as shoes, I see the sale stickers and an empty cart.
Instead of receipts I have pictures.
Because shopping for those cute little baby shoes isn’t something we’ll get to do. Instead we’ll be rocking AFOs, and yeah his AFOs are cute, and we’ve waited months for them, and I’m glad he finally has them because he needs them and that’s ok.
Sometimes, the behind the scenes of it all, sneaks up on you. The reality of it is that we won’t get to have the experience of going shoe shopping for all the cute little baby shoes, because in less than two weeks he’ll have finished his adjustment schedule and will be wearing his AFOs whenever he’s not sleeping. And it is highly possible that he could potentially need AFOs for a very long time - always..which means even shoe shopping as he gets older will be different.
It means that his cute footed outfits will no longer be a wardrobe option as they’re too thick, it means the time of wearing his cute winter boots that were bought a long time ago will come to an end, it means matching shoes with outfits is becoming a laughable matter, and that finding socks that work just got a lot harder.
Right now he doesn’t care what’s on his feet, and id give up all the cute baby shoes as long as he gets what he needs...that doesn’t mean I won’t miss them or that I’m not happy with his new kicks.
Sometimes the little things suck, sometimes the reality of the differences slaps you in face, and you know what? That’s ok, because he’ll look at me and smile, and we’ll move on.