Here's a technique speech you can practice with your child at home. 💪 👌
We know it's hard for parents with work & life in general, but we encourage parents to keep up the hard work. Continue this excersize at home, even if it's only 10 minutes. It makes a difference! ❤️ 🧡 💛 💚 💙 www.Therapies4kids.com💙 #therapies4kids#autism#speechtherapy#cerebralpalsy#specialneeds
Sometimes it’s hard to know how much to share about what’s going on in our lives.
Whilst I try and remain positive in all that I write, I’m also nothing but 100% honest. I do so in the hope that others might feel less alone, but also that by doing so I might also learn from others how to help Tommy or Jude with their challenges.
Tommy’s really struggling at the moment. His emotions and behaviours seem to be all over the place. Some days I really don’t know what it is he wants, or how best to help him.
Yesterday everything went pretty well. Monday’s and Tuesday’s follow exactly the same routine each week. I meet him from the school bus, he goes to my parents house for dinner, I go do some work and come back two hours later.
For about the last month every time I come back I’m met by Tommy trying to hit, kick and bite me. Sometimes he’s laughing and excited, sometimes he’s angry and screaming. It lasts anywhere between 2 minutes (yesterday) and 20 minutes (today) and then he settles down as if nothing ever happened.
Today on the walk to my parents house we bumped into two girls who he used to play with. They came over to say hello and Tommy buried himself into me, screaming and stomping his foot on the floor. I had to carry him for the rest of the journey, he just couldn’t deal with seeing them unexpectedly, out of context.
He was good at my parents house, then as soon as I arrived he lost it. Trying his hardest to hit, kick or bite me, running off to kick the walls and doors, then launching himself back at me when I’d stop him.
Tonight’s was the longest outburst yet. Probably the strongest and most physical too. If I don’t stop him he will break things or hurt himself. When I do stop him I get blow after blow aimed at me.
The difficult thing is trying to figure out what it is he wants. Why he’s doing it, or what I can do to lessen/change it.
He had a shower, then was giggling and wrapped round me for the rest of the night, no concept of what it is that he’s done wrong.
Those 2, 5, 20 minute outbursts can ruin your whole day, make you forget any good that’s gone before it.
Hopefully I can find a way to help make life a bit easier for him soon ❤️
3 3111 minutes ago
It goes back to the square peg and a round hole analogy I made before. To get the peg to fit in the hole you destroy parts of the square peg. Same thing with an ASD child, if you force them to always adhere to societal “norms” you are destroying parts of that person, especially their self worth and self esteem, because whether you know it or not, your actions are telling them they aren’t good enough as they are. Accept the differences that are out there, and harness the power of those differences, don’t weaken the individual by singling them out and forcing them to change for you.
“On the way home with my son fully recovered and eating an ice cream in the back seat, I allowed the tears to pour out. I know how to be strong in public to keep my son safe. But it’s a whole different thing to be strong in the face of kindness.” On public meltdowns and kind strangers, link in my bio. I had a lovely catch up with @toomuchmotheringinformation today and was explaining how the older my son gets, the more understanding strangers seem to be. Perhaps it’s because he’s more obviously disabled than he was when he was little or perhaps it’s because people in my corner of south London are just bloody brilliant, we experience a lot of kindness. But the strange thing is, the kindness is always what makes me crumble. So if you offer to help or just just offer a kind smile in a really bad moment - FYI I will probably cry. But I always appreciate it. Pic is a throw back to when when I could easily escape from playgrounds mid meltdown. Oh how I miss babywearing days 💖
Two weeks into the school year, my 5 year old son was asked to leave a daily class that he was attending, and find another institution. He was disruptive, he didn't fit into the mould.
I'm deeply saddened. I'm angry. I'm worried about the years ahead. It shouldn't be this hard to be different. At age 5.
We've got a lot of learning and growing to do Irshaad. We gotta be strong. We gotta love ourselves.
May God forever guide and protect us on this journey. Ameen.
I had a serious post all ready to publish this evening... but sometimes, you just need to put everything on hold.
It snowed! At last. Sasha has been desperate for some. Even better than that, there was enough snow to give the ground a white covering. The girls were super excited (anyone would think we live in the South of the country where we very rarely see any snow 😄) but by about 7pm, it had stopped. Worries crept in about whether this would be it, the only snow they’d see all year, and that was it. They kitted themselves up a bit like four years ago (see other pic here which came up in my memories this week) and they ran outside to have fun with the white stuff.
Even better, our kitten who will be a year old in February and who has not been out in snow yet, came out to join them. A little tentatively at first, but soon he was crazily bounding round just like the girls!
Predictably, given that her body temperature runs ten degrees higher than the rest of us at all times, Sasha stayed out there for well over an hour, long after Tamsin and I had to call it a day because of freezing toes and fingers! She did well building her own snowman though, I was very proud of her 😍⛄️ Perfect timing for my siblings post which I published yesterday, a bit late in the month. I’ll go and update it with this!
🙌swipe for both photos🙌Our Celebrate Beautiful You, A Prom Spectacular for the Exceptionals is less than 2 weeks away. This event is only possible because of the enormous support from all of YOU and our community. I have to tell you, that I am truly the luckiest girl around...I get to meet and spend time with the most outstanding people in our community and then am able to go on my phone and reach out, at any moment, to the most kind and compassionate people on this planet, all of you. This prom truly brings out the best in everyone and I believe it's because we are a reflection of the most beautiful people in our community. Starr, Urban Flair Photography @urbanflairphotography , our foundation photographer, offered all our prom attendees an amazing opportunity to put on their gowns and their tuxedos yesterday, in her photography studio, and she gave them a real photoshoot ...all for free, empowering our special needs community. I cannot express in words how thankful I am for Starr....she is the best of the best. Cinderella's Gowns @cinderellasgowns donated all the gorgeous gowns to all our young ladies,all for free. All the jewels on our beautiful girls were also all for free, donated by you and Cinderella's gowns. All our gentlemen were dressed to the nines in tuxedos, for free, owned by our foundation. These tuxedos were donated to us a couple years ago by 2 shops in Newtown, Connecticut, Julie Allen Bridals @julieallenbridals and Brookfield Cleaners & Tailors &Men's Shop, and each year we rent them, for free, to our exceptional gentlemen...and I cannot forget to mention the countless hours our seamstresses spent on tailoring, all for free. But for now and throughout the day, I would like to share some amazing pics from Starr and her photoshoots yesterday. They will make you smile. Together, We Are Making A Difference. If you would like to make a donation towards our prom, you can click the link in our bio. We are a 501c3 non profit with no payroll ..thank you ❤️ #specialneedsprom@ccofthesouth#differentnotless#makeadifference#bestnightever#jonnyandxena#jonnyandxenafoundation#prom#xenathewarriorpuppy#spreadthewords#celebratebeautifulyou
You will be waiting a long time if you ever expect me to beg for forgiveness if one of mine melts down in public. I know what they go through from the moment they wake up till they eventually fall asleep. It would feel like a betrayal to the truth of it. “Their” type of autism is all-encompassing and any behavior they show isn’t out to make anyone else have a bad day. I am 💯% positive of that. How Tanner still finds time to grace us with a smile each day is beyond me. You can try to walk in his shoes but you better be a master at doing it with your eyes closed in public bc he is. So I focus on what matters. I can only try to be the calm in the storm. That’s all I have energy for. I have no time to worry about how someone perceives me as a parent. Those days have came and gone if they ever existed at all. That’s my perspective when it comes to “our” autism journey. So that is one of the most frequent questions I get asked. How do I apologize for my child melting down in public? Answer: I don’t. If Koi drops down in the middle of aisle 4, I will kneel down beside him until he’s ready for me to help him back up or vice versa. Lol #autismacceptance#differentnotless#noapologies#adifferentperspective#autismdad#mysunshineboy
15 782 hours ago
Okay so I didn’t use these exact words BUT this was my tone on the phone with the district representative, principal of the school, OT, speech , lead teacher and Intervention Specialist.
They requested for me to be on a phone conference to discuss the ETR. Then they start rambling off all these assessments they’re going to do and talking amongst themselves as if I wasn’t on the phone. 🛑. Pump the brakes ✋🏾. Back it up.
You are not about to talk around me, above me or over me about my son and what you plan to do.
I could hear the irritation as I asked the name...not abbreviation...for each assessment and what exactly does it measure.
I also requested a copy of the ETR and IEP a week before our meeting so I can review.
Next year is Zion’s senior year and it’s crucial that he gets what he needs. I don’t really feel as if they are adequately preparing him for life after high school.
7 313 hours ago
I would be surprised to learn if you have encountered a teacher over the years who has actually heard of hyperlexia before...
This one page hyperlexia handout is the perfect way to introduce hyperlexia and your child to your child's teacher. It doesn't have to be just for a classroom teacher though. It could be a piano teacher, swim instructor, speech pathologist, occupational therapist, daycare provider, etc. Use it with anyone who works with your child and isn't yet familiar with hyperlexia. Simply print and fill it in with your child's strengths, weaknesses, and current interests and provide it to the teacher. It's a great way to introduce the teacher to your child so they can better support them.
And yes, I used the name Ash on this example because Pokemon is life for my boys...
You can grab this free printable on the blog by searching for "classroom supports and accommodations" or by using the link in my profile.
He woke up 6:30 and went straight up to the loft, so I went to check on him and found him sitting by the window. I asked him what he was doing, he said “Ta-da!Sun!” Then he pretended to grab sun and gave it to me saying it’s hot 😂😊❤️ 6:30に起きてすぐロフトに行ったジュリアスを見に行ったら、窓際に座ってた。何してるのと聞いたら「ジャジャーン！お日様！」でお日様を手で掴む振りして熱いよと言いながら私にくれた。笑。
Remove the language from your mind that says: “NO, I CAN’T do that.”
“That’s great, BUT NOT for me.”
“I CAN’T I am too busy.” Replace all of those negative words with:
“It is for ME, I WILL succeed!”
“I AM capable & deserving, everyone is busy!” Does it scare you to say “I Can”, “I Will”, “I Am” listen to that fear, confront it, work to move it aside, take a giant leap of faith away from it, I assure you more exciting possibilities are on the other side! Yes it’s hard to do things when you fear no one will clap for you and if you believe it won’t work, well that will surely be your outcome. Try on the “What if?” Mindset. Trust me, believe in yourself & give it all you got 👊🏼 #getoutofyourownway#fearisaliar#rocketshiptosuccess#bethebestyou#dontshrinkyourself#fivesecondsofcourage#justbe#justjean#justbeteam
When I was young, I always wanted to fight... for better or worse. But I always heard the tape play in my head “you can’t throw a punch because your legs don’t work.” This tape stopped me from ever putting on a pair of gloves, because that’s not something that disabled people do. An uphill battle. This morning, Marshall helped me change that tape from a lie to a truth: I can fight. He wrapped my hands, and showed me how to hit a bag. I can’t even describe the feeling of freedom I felt for a solid hour - the shock of my right arm hitting the heavy bag fulfilled a promise of childhood that I had made to myself. Go and fight. You can find Marshall @01thefox at @trainingcampnashville