#TB to last week's Christmas #CarolConcert raising money for @SmileTrain 🎅
It was a magically festive celebration full of singing, mince pies, and joy! 😋
Thank you to everyone that attended and took part this year 💕
1 283 hours ago
This guy blows me away everyday. I knew from the moment I found out about his cleft lip and palate it wouldn’t be an easy journey but he has honestly been the easiest baby to go through it with! Every medical personnel he has came in contact raves about him how well he does, how smart he is, how great his repair looks, and everything else. His appointment went great! Beyond my expectations ❤️ #cleftstrong#cleftpalate#cleftlip#cleftproud#cleftmom
Hello World, I’m Leo 👋
Leo was born December 10th at 3:45pm weighing 8lbs 5oz and 20in. He stole our hearts from the moment we heard his cry. Leo was born with an incomplete unilateral cleft lip and palate. While we knew the cleft lip was coming, the cleft palate we discovered at birth. Leo will have a few procedures within his first year and some hurdles but is already showing what a strong boy he is! We have a great team in place that we are looking forward to working with so that we can help him thrive. We are enjoying getting to know our new family member and are so thankful for all the love and support for our little guy. We are so glad Leo chose us to be his family and look forward to all the fun being a family of four brings! Jack adores “his baby” and is already the best big brother 💙 #sweetleojames#myperfectboy#babylove#cleftstrong#cleftproud
I made it to 200 followers! Thank you for all of your support. Keep spreading my story! My goal is to help teach as many people I can about cleft lip & palate & choosing kind! #cleftproud#vizsla#choosekind#rescued
Lief mooi ventje, onze kleine Revi 💙vandaag zijn we opgenomen in het AMC ziekenhuis en morgen is de dag, 13 december, de dag van de lipsluiting operatie. Vanaf dat je in mama’s buik zat en wij hoorden van je lipje hebben wij hier tegenop gezien en nu is het morgen zo ver. Lieve mooie jongen.. voor ons ben je al prachtig en perfect met je unieke extra brede glimlach! Na morgen zal je een nieuw gezichtje hebben.. zal je heel anders zijn? Lijk je straks nog veel meer op je broer? Mega spannend en eng.. Maar een ding is zeker.. je bent ongelofelijk knap en zal dat na de operatie ook zijn met je nieuwe forever smile! Mama en papa zijn ontzettend trots op jou kleine vent ❤️ houden van jou tot de maan en terug! #cleftstrong#cleftproud#loveyoutothemoonandback
Lief mooi ventje, onze kleine Revi 💙vandaag zijn we opgenomen in het AMC ziekenhuis en morgen is de dag, 13 december, de dag van de lipsluiting operatie. Vanaf dat je in mama’s buik zat en wij hoorden van je lipje hebben wij hier tegenop gezien en nu is het morgen zo ver. Lieve mooie jongen.. voor ons ben je al prachtig en perfect met je unieke extra brede glimlach! Na morgen zal je een nieuw gezichtje hebben.. zal je heel anders zijn? Lijk je straks nog veel meer op je broer? Mega spannend en eng.. Maar een ding is zeker.. je bent ongelofelijk knap en zal dat na de operatie ook zijn met je nieuwe forever smile! Mama en papa zijn ontzettend trots op jou kleine vent ❤️ houden van jou tot de maan en terug! #liefde#schisis#cleftstrong#cleftproud
💙 (Story): Hello all! My name is Medina. I am 1 of 700 that was born with a cleft lip and palate. I had my first reconstructive surgery at 3 months old, then at 9 months old and when I was 1 1/2. My gum is still slightly open and I wore braces for a couple of years. It was always an openly discussed topic at home, that once I turn 18, I'll have my final big surgery. The only person I was able to trust this important surgery with (that turned out life changing), was a doctor in Germany! I wouldn’t be who I am today without him. I am #CleftProud! 💙 Check out our story to read about our 🎄 12 DAYS OF @CleftProud GIVEAWAYS! 🎄
Today we got the all clear for Harlows post op checks!
Her sternum has healed nicely, her heart is, as David the Echo man says, "beautiful".
So finally we can start tummy time again and on the next hot day, take this kid in the pool! 🙌🏼 Poor Harlow has had 3 out of 7 months of her life restricted to her back and sides. So as far as tummy time and neck strength goes, she's pretty behind. We got lots of work to do baby! #wegotthis
How many of you ever give in & let the opinions of others prevent you from going after that thing that you want in life? 🙋🏼♀️
This is one of the number one reason why people don’t join me on this incredible coaching journey. —> 💁🏼♀️Girl, trust me, I get it.
I thought & felt the very same way when I was first given the opportunity. I had to stop, put aside the fear of what others would think, and ask myself a few things.
💗What if this opportunity would allow me to be home & more present with my 3 incredible children? What if I didn’t have to work a 9-5 and miss out on those precious moments?
💗What if this opportunity allowed me to really tap into who I’m meant to be? To finally feel fulfilled & purposeful! What if it allowed to me to help make a difference in someone else’s life?
💗What if this opportunity could provide an income that would relieve our family more from our financial stresses, allow us to say “yes” more often to creating more memories with our family? & to be able to pay off debt & eventually reach finacial FREEDOM?
💗What if this is what God is calling me to? What if this is that thing I have been praying for to come into our lives? What if I’m faithful to him and allow him to take the reins?
💗What IF this opportunity DID provide those things? I mean, this would completely change our lives!!! & then I could help others have this for their life too? How INCREDIBLE would that be? 💗What if this opportunity gave me that extra accountability that I definately needed to get my workouts done and to build a healthier relationship with food, to fuel my mind every single day with personal development & to grow to my fullest potential, because this career required it?
If this opportunity can really provide these things for our life, then why would I EVER let the opinion of someone else stop me from having all of this for me and my family?🥰
Other people's opinions aren’t going to pay my bills OR give me the ability to spend more time with my kids OR the chance to create more memories with my family!
I would choose over and over, whatever is best for our family, than let someone’s empty opinion...
Our elf & reindeer got poppin' with some Pringles last night 😂
What did your elf do?! Comment & let me know below bc we could all use some good ideas 😜
The stomach virus hit this little buddy hard Sunday night & he has been sooo sick! Waking up to him smiling & being his goofy self this morning was such a good feeling! I'm ready to disinfect our house from top to bottom & praying the rest of us don't catch it! 🙏🏻
wow how much has changed in just two and a half months. as you can see the cleft has become a lot smaller thanks to the NAM and dynacleft/steri-strip taping. crazy how these two methods can change so much. we’re down to two months left til we get an official surgery date. we meet with cainen’s surgical team in february. ✂️🛠💉 side note* i’m in no rush to have his surgery done. how do you say good bye to something God blessed you with, the face we fell in love with? something we’ve gotten so used to? i so wish there was a book on this... i love you mister eli 💪💚 #update#cleftstrong#cleftproud#cleftbaby#cleftlife#cleftmom#caineneli
My 3rd little man crush Monday #MCM 😍😍😍 He has smiled with his eyes since the day he was born. Hates losing, can't stand it, super competitive and knows everything about the Titanic. He's a perfectionist and ultra stubborn. And apparently he likes his girls a little bit older. 🤣😂🤣 Booboo the typical baby of the family and yet a very strong type A personality, already. I hope he learns to control his "gifts" so that they don't control him. He's such an incredible blessing. 🙏
4 452 days ago
Perfect shirt and Harlow demonstrating why it is.
Looking for a miracle cure for reflux??? She's already on meds and I'm doing all I can but it seems like she's got silent reflux during the night as she's waking up screaming as if she's in pain. 😓
Send this tired mumma all your prayers, coffee and a good Cab Sav 💗
14 382 days ago
Happy Due Date (Friday), Ella babe! I’m a few days late, because apparently throwing a newborn into the mix at home with an 80lb dog and a 21 month old babe (who is very sick and hitting her terrible twos early) is a whole new ball game lol 🤪 I’m not going to lie, it’s been pretty cray cray at the Cunningham residence the last week!! But we’re managing! Ella met with the surgeon last week to discuss her lip and palate surgeries and to meet with the orthodontist to get measured for an appliance that will be put into the roof of her mouth next month to bring her gums closer together before first surgery in a few months. We also have to use a special tape to try and bring her lip closer together before then, which is so sad to see on her face every day. It’s a long road ahead for her but she’s settling in to her new home perfectly! We’re so thankful for all the visits and the help since we got back last Saturday! I couldn’t be happier to have my whole family home!! 💜 Life is good!
Days 3, 4, and 5 post-palate repair surgery:
Mabel has been doing very well during the day, but struggling to sleep at night due to congestion caused by surgery. This is common and should (please, let it be) temporary.
She is adapting to her new mouth and is as happy and active as ever. She wears arm restraints called “no-no’s” when we aren’t closely watching to prevent her from putting anything, including her fingers, into her mouth. Mabel did well with her first baby food post-surgery tonight.
We are so thankful to have this surgery behind us and for all the love and support we’ve received. Thank you!
5 802 days ago
Teaching my booboo how to snack right while I track my days food and plan the rest of the week!
•Two weeks post op from lip repair and we are happy with the results. •Theo isn’t in the .25% anymore. He is now in the 2% YAY!! BUT always 100% happy! •Sometimes life gets hard and in those hard times that is when the growth happens. LIFE IS GOOD. ⚡️
23 1786:46 PM Nov 9, 2018
Today is the day our baby girl gets her forever smile. I pray she knows how perfect & beautiful she has always been from the moment she entered the world!!! We know God has placed her exactly where she needs to be and His everlasting arms will be with her during the surgery!
It breaks our hearts & makes us sick thinking of the pain we won’t be able to control afterwards.
They will be attaching her lip & lifting her nose, & putting tubes in her ears! I am excited about not having to put a device in every time to feed my baby!!😍😍 If everyone can say a prayer for baby girl that would be amazing and very appreciated!!❤️
22 2941:21 PM Jul 6, 2018
My sweet boy 💜 he’s getting to the point where he doesn’t like his NAM or his tapes anymore 😕 he’ll spit out his device and rub his cheeks til the tapes break or come off 😩 just a few more weeks til we don’t have to deal with anymore of that! Hang in there JP! 😅💕 #cleftbaby#nam#cleftproud#cleftstrong
Two days post surgery and even though the bruising is giving me a heart attack, I’m really happy with how it’s healing. This little girl has been SUCH a trooper and even slept through the whole night last night 💗
40 5525 days ago
I can’t believe Ella is one month old (was 4 weeks on Friday)! Well, I can actually. It feels like so long ago that I was in the ambulance to London, doing everything I could to make this little girl stay in my belly a little longer.. at least long enough for Wes to be able to be there when she did decide she was ready. The day of her birth had to be the longest and most traumatizing day of my life though! I keep replaying the day over in my head and wonder if there’s something that could have been done differently. After being told by three different doctors that I wasn’t having this baby for a while and that my pains were “only Braxton Hicks”, I still thought that they were wrong. Not because of the pain I’d been in, but I had a bad feeling it was going to happen soon. I even said I should pack a hospital bag, which I did not 🤦🏽♀️. Wes kept saying I was crazy and that it wouldn’t happen again and was always keeping me calm. Now here we are one month later, still 7 weeks earlier than when Ella was supposed to be born. And even though I’m still having a hard time processing it, I’m happy to say that Ella is doing well! She really is one tough cookie! She’s grown so much over the last couple weeks and is getting much stronger. She is very alert and I think she loves all the attention ☺️. She’s a whopping 4lbs 8ounces now, which is a over a pound more than her birth weight (she went down to 3lbs after birth too). She’s out of her incubator, in a big girl bed and is off of CPAP. She’s still having her episodes with her heart rate and oxygen dips but she has both good and bad days. Today was a bad day. 🙁 She was also doing really well tolerating her feeds (which she’s still getting through the NG tube), but today she got sick after each one. She had a blood transfusion a couple weeks ago because her hemoglobin was low and it seemed to help a little bit but she may need another one soon if her hemoglobin continues to be so low. Unfortunately, with preemies you often take one step forward but two steps back. Hoping Ella only moves forward from here on out though! Positive vibes only 💜 @ourlittlepreemie
30 3832:15 AM Oct 22, 2018
Honestly, during my pregnancy I worried a lot. I was afraid of what my future held. What was my life going to look like?!? Now I know now my life is beautiful, happy and sometimes messy. (Let’s be real here I have a newborn and toddler!) ALSO I know I can do HARD things.