Some good advice! #takeoffthearmour I’m trying to get better at recognising feelings and realising that I am resilient, I am constantly looking after myself, constantly fighting. It’s a battle everyday. Today I had a shower and it was so much physical exertion that I saw stars afterward and had to rest! My mind has been racing and I’ve been feeling so stressed and anxious. Had a good mini counselling session through my work health benefits and realise that I’m needing to rest to fuel up, I am empty right now and if I give myself some time to feel angry and upset with high pain and some compassion to myself then I can empower myself to look after myself again!
I often lay awake at night due to pain. When i do finally get some sleep it is never for very long. I never feel rested any more. If only i could get a full nights sleep...then maybe my daily struggle with pain would seem little easier.
👏👏👏👏👏 #Repost@convivendocomadorcronica (@get_repost)
Meu olhar se perde no sofrimento de tantas mulheres, a doença já não era o bastante? foi preciso submeter essas pessoas ao ultraje? Quanto vale a cura, ou melhor, a promessa de ficar curada? Até quando vamos nos submeter aos milagres engendrados? 🌼
Dói. Dói terrivelmente o silêncio, a violência, o abandono e a fragilidade da verdade. Nada disso é novo, são anos e anos de tentativas para trazer a informação, muitas mulheres tentaram contar sobre a violência mas não havia escuta, ninguém quis ouvir. 🌼
Foi preciso mostrar o rosto para a voz tomar importância, se não fosse a coragem de uma mulher, todas as outras não teriam sido levadas a sério. Os abusadores sabem disso, contam com o preconceito e se escondem, contam com a falta de empatia, descrédito e da nossa fragilidade como pacientes para maltratar. Submeter. 🌼
De todo esse episódio, sinto muito, muito mesmo por todas as vítimas.
Quantas deixaram de viver plenamente, quantas desistiram de lutar pela vida, quantas sentiram-se indignadas com a religião e perderam a fé, quantas não tiveram um mínimo de atenção? Quantas vezes vamos precisar passar por situações semelhantes? 🌼
Many studies have found that people generally live longer, happier, healthier lives if they have a strong network of support from friends and family. Blessed to have such beautiful, strong women in my life to help support my wellness and balance. Think Happy, Be Happy. Yella Ms. Nineveh!
Good morning everyone
So yesterday I had a really bad chronic migraine with aura but it seemed to have passed by later afternoon so that was good.
But late last night I started to get really bad pains in my hands and they became stiff I've spoken to my doctor this morning and he has said it's down to my conditions I have but he is going to speak to neurologist today and get back to me.
My neurologist appointment is on the 1st of February but he mite want to see me before then we don't No as of yet.
I plan on going out today just for a little bit but it's really cold at the moment where I live so won't be out long.
I've be using my painkiller gel on my hands like my gp told me to but it don't seem to help.
My other pains are under control its just my hands that's giving me a hard time.
Eating it still a struggle and I still feel sick every day but nothing we can do for that only take sickness meds till we can sort something out. Its just so hard everyday but we got this.
I think this is really hard for a lot of people. When we remember our body doing certain things so easily, it is difficult to imagine not being able to do these things regardless of age or injury. Then reality sets in and we have to modify, decrease weight or reps, or completely stop doing a particular activity altogether.
Whatever your body needs right now at this time has to be okay. Being kind to ourselves and gently rebuilding fitness norms is a wonderful foundation or stepping stone to other fitness and wellness progressions.
I would have never thought I could do what I was doing after my second injury and before the car accident. Twenty plus years older and more fit than when I was twenty. That was great. But so is where I am at now. There is something quite lovely about being present in a gentle way with our body as we heal from an injury or as we age.
I want to encourage a intention of progressing in function and wellness, but you do not have to do everything that everyone else is doing. You do need to be able to function quickly and efficiently in an emergency. Everything else is icing.
So don't hurt yourself trying to do what you used to be able to do. Do what you can now. Today. Learn what your body needs and work hard to establish that foundation and then see if your body is able to progress. One step at a time. Make it a posture perfect day! Visit my YouTube channel when you can and subscribe😁(link in bio)
Forgot to tell mention what the doctor thinks is wrong with my wrist/thumb. It’s most likely #dequervainstenosynovitis. Crazy painful if I try to use that hand for anything or take it out of the brace. Just glad it’s not my dominant hand 🙌. Hopefully I’ll get an appointment with an orthopedist soon and can figure out what we can do about it🤞. No surgery please 🙏🏼😭🙏🏼. #spoonie#spoonielife#chronicpain#chronicillness
Advent Calendar Day 16 ~ I love mints, especially on the go! Pop a Thieves Mint into your mouth for the perfect way to freshen breath after meals. More importantly, these mints are from naturally derived ingredients and free of artificial sweeteners, dyes, and preservatives. That’s key in handling these autoimmune disorders of mine. Thieves Mints are a choice that I feel good about. They contain Young Living’s Peppermint essential oil and Thieves essential oil blend to create the perfect combination of minty coolness with a hint of sweetness. Yum! 😋
2 17an hour ago
And don’t you forget it 🧡
5 261 hours ago
There is still time to order an edible basket! Dm for more info. 🎄🎄🎄
Are you struggling with chronic, systemic pain, that's not associated with an injury?
Very often this ambiguous pain is coming from inflammation in the gut. 🌱
If you've looked into the gut microbiome, you'll likely know a bit about parasites and candida. But there are also a bunch of 'normal' gut bacteria that have been linked to autoimmune-like pain.
Klebsiella is one of these bacteria, that if left to overgrow in the intestines (or to enter the blood stream via a leaky gut), can cause huge amounts of inflammation that results in chronic pain. Elevated levels of klebsiella can also increase anti-klebsiella antibodies that can lead to cross-reactive self-antigens that begin to attack the joints. There are quite a number of peer-reviewed research articles showing the link between klebsiella and autoimmunity - and as technology evolves, more research is unfolding.
I use one of the best microbiome stool testing available in functional medicine that can detect the type and level of pathogenic activity in the gut via DNA methodology. Understanding what is happening in the gut, is integral to then creating an effective treatment plan to address the root cause. I absolutely love this stuff, and love even more the results that come from it!
~ Filipa Bellette
Functional Medicine Practitioner
I spent years and years avoiding talking about my health with anyone. Doctors told me I was healthy or that it must be all in my head. Calling you anything was better than calling you ‘I don’t know’ so I made up some names for you along the way.
I called you depression, fibro myalgia, PTSD, anxiety, black mold poisoning, adrenal fatigue, and even karma. I also made up names for myself. I called myself lazy, weak, a liar, not pushing hard enough, and broken.
But then, I finally met some angels who got you to tell them your name. And I stopped calling myself fake names too.
Learning what to call you helped me learn who I am. You are in my DNA and a part of me, even though I’m the only one who can see you.
And I will keep screaming your name from the rooftops until everyone knows what to call you, and I will try to show them what you look like.
Now I call myself a constellation and I call you Ehlers Danlos Syndrome. I don’t always love you, I don’t always even accept you, but at least I know your name. And that changes everything.” - @stevieboebi 📸: @marsupialpudding
171 22403 days ago
:: Endo Surgery ::
Anxiety is no stranger to me. In fact, when I’m pushing myself too much or bottling emotions up or driving away my fears it comes knocking. And knocking it came recently in the loom up to my third surgery for Endometriosis a few weeks back (which went as well as I could have hoped for 🙏🏼).
Often in a space of fear, stress makes the mind sharper and more strategically focussed to get us home to safety. Yet many of us are operating at a base line far deeper than this. I’m talking stress on top of stress.
We deal with it, push it down, hide it, splur “Oh I’m fine, just a bit stressed”. This ain’t normal.
In this state, our body fills with too much adrenaline. We lose focus and clarity. We become forgetful and depleted. At a time we need rest the most, we’re on a hamster wheel we can’t get off. Plates keep falling but the wheel keeps moving faster and faster.
Living with Endometriosis this is a disaster in motion. Stress can cause an unfortunate series of events that lowers progesterone levels and swings the body to an oestrogen dependant state. This signals the endo to grow.
When we’re caught in this cycle, we can forget the things we most need, the things that bring us back to vitality, calmness and nourishment.
So I’m sharing my list of nourishing practices across RELAXATION rituals // SLEEP remedies // MOVEMENT magic // FOOD for fuel in the hope it will help you remember your path back to wellness.
Over the next couple of days I’ll be sharing blogs covering:
:: PRE SURGERY PREP
:: POST SURGERY HEALING
:: MANAGING ENDO LIFE
FIRST UP IS ALL ABOUT PRE SURGERY PREP and how to get your body, mind and spirit ready for surgery - link in bio. AND please share your own rituals, tips and practices too!! I can’t wait to hear them ❤️
Thank you @anxietyfree for just saying it like it is.
Anxiety is hard.
It's exhausting and dominating.
Those good vibes you feel.are so precious.
Don't let people take them away.
We are always here for you ❤
19 6162 days ago
3 years ago today I had my 8th surgery...at that point I had no idea what was wrong with me, it was my 4th year of hospitals and surgeries and emergency surgeries and drugs and procedures and near deaths etc etc etc. Not knowing what was going on in my body to cause me so many problems and so much pain...I’m not gonna lie, it was awful. Absolutely horrific! I couldn’t even imagine getting to a point in my life where I would find treatment options that would actually mean I could live my life with a fraction of the pain i have suffered with for yeeeears, but have never gotten used to.
I’ve taken HUGE steps forward this year, & all I want to do is take this version of me (who was gripping SO tightly to hope, who cried herself to sleep most nights) in my arms and tell her everything was gonna be okay. You’re gonna make it! God’s not done with you yet 🙌🏼💚
❄️3 years ago today❄️
“Having surgery this morning (this will be my 8th). Just waiting to get taken & will be in High Dependancy by late afternoon.
It's so easy to fear & worry when looking ahead at what's to come, & you loose sight of who it is that can move mountains, walk on water, & knows you & me so intimately. I am loved by an incredible God, & when I keep my eyes focused on Him, instead of what scares me, all of that fear & worry fades knowing that my future is secure in His hands. I feel safe, because He is with me 💕🙌🏼”
14 24816 hours ago
NEVER MAKE PLANS // geeze, has my #chronicillness taught me nothing?! I swear when I make plans, #lymedisease just laughs at me.
Looks like it’ll be another Saturday stuck in bed (no surprise there 😉) .
Keep me company?