One of my biggest symptoms is chronic nausea/ constant stomach pain. I've dealt with this for a few years now and eating has been quiet the struggle...like I just don't ever eat much, we aren't exactly sure how I'm still here?😂(my IV fluids keep me hydrated which really helps). I have found that cold foods seem to be easier to get down for some reason so smoothies are one of my favorites. I recently discovered @dailyharvest and I'm kinda loving it. They send smoothies right to your door. They are pre-packaged in these cups with all the ingredients needed and when you are ready you just add some liquid and throw it in your blender and your set(i also add protein powder and coconut oil for calories). They have a lot of different flavors that are surprisingly good. I still can't get much of it down but I love knowing what I can get down is organic and chocked full of nutrients.
💩💀 Hopefully my PCM has a suggestion. I’m pretty sure the issue isn’t just my usual problems at work. I know colchicine can cause GI issues but nine started prior to starting colchicine. Having GI motility issues makes it hard to figure out bugs sometimes. It also makes me feel extra sick because my guts are moving more. When areas move more often if makes me feel sick. I also have a lot of pain because parts that don’t usually move are moving. It’s stabbing pain and waves of nausea.
Thank you @amazonprimenow for the ice packs when I order food. I put them in pillowcases and use them to ice when I’m hot or nausea (or both).
So we beat on, boats against the current, borne back ceaselessly into the past. //
Two years ago I got the tattoo of my dreams & since then the meaning as grown even more strong to me. The final words of The Great Gatsby tie together the significance that our past has on our life’s and the dreams we have for our future. This quote to me represents the trouble humans have with being able to move beyond our pasts and how we hold on and romanticize things that have happened to us.
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I often come across thoughts in my mind of wishing it could be the way it used to be, before I was chronically ill - when I felt like I could achieve whatever I put my mind to and I didn’t have the limitations that I do now. But I often forget that although the past year especially has been the hardest for me it has also brought beautiful things into my life. I have learned to appreciate the small things I never even thought about, my relationships have grown stronger and I’ve felt a love I never knew was possible before. Even in hardships, we are able to find beauty and push through, “tomorrow we will run faster, stretch out our arms farther. . . . And then one fine morning.”
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Things that got left behind at goodwill. Not damaged or stained or anything, just items that I thought were too boring to be worth it. I’m working with a limited amount of capital, so of course I want to increase and diversify my inventory and fill my stores with high quality brands, but I feel like the smartest way to do that is to pass on items like plain black pants and plain gray skirts because they don’t photograph well, which will effect the sale of them, even if they’re Theory or Athleta or Eileen Fisher. Do you guys pass on high quality items because you think they’re boring or is it just me? 😂
Fun fact: I’ve never been to a thrift store with real carts before 🙄😒
8 346 days ago
After over 13 years of chronic nausea and occasional vomiting, I finally have a referral for a specialist and an order in for a bunch of tests - but ONLY because it got so significantly worse in the last two weeks that I'm eating <700 calories/day and taking unprescribed (to me) Zofran 3-5x daily and STILL dry-heaving/vomiting at least 1x daily.
Before today, every single doctor I tried to get help from told me it was in my head - that my nausea was a result of my anxiety disorders and other mental health conditions. Why? Because a) I have several mental illnesses and b) I'm AFAB.
This is one of the ways female-bodied people still get told we're hysterical. Having a mental illness just increases the
My symptoms are not psychosomatic and never have been. I have lost weeks if not months of school and work to illness without a doctor ever believing that it was real, or that I deserved treatment.
I am so grateful to Dr. Katina Martin at Natural Family Health for spending over an hour with me today, listening to my symptoms, trusting my experience and knowledge of my body, immediately putting in for testing and a referral, giving me options if those don't pan out, and scheduling a check-in eight weeks from now so that this doesn't end up in the ether.
AMAZON FINDS! ⭐️
Emo oil lip balm
This tube is a MIRACLE IN A TUBE!
I just got done dancing and omg I haven’t danced in years! I just danced to some pop I think but... to go from dying thanks to the pain and feeling death in my Pooh bear tummy, I’d say is dancing 💃🏽 is ANOTHER miracle. Thanks Mary Jane 💐 😍. But anyways...this chapstick I stumbled upon online, Amazon, while looking for chapsticks. Some people seem to hate it but a majority have left positive reviews. I bought it after a burn victim said it helped his lips and other parts around his mouth heal quicker and helped him cope with the pain as well. Honestly, from the bile and acid reflux that comes up due to my digestive issues, my lips are always on fire 🔥. I can’t tolerate many lipsticks and that’s why I NEVER do my makeup. It’s too painful to put makeup on. But with this little guy, the burning sensation cools and my lip bruises heal MUCH faster. I’ve woken up with dry lips to a point they tear. I’ll feel bumps on the inside of my mouth. It’s weird. And of course who could forget the PEELING. It’s just the best thing ever. 😂 No. It’s not. But this little guy saves my lips! I have to use a generous amount due to my chronic glitter explosion 💥. But I’m sure a healthy human being wouldn’t need as much! ☺️😀
Health update: SICK AS A 🐶
I’ve been having a couple meals a day which is a miracle and more than enough for me. But recently, these past 3 days, everything and anything I eat or drink, comes back up or my body aches are intensified. It’s insane to write this because it’s stuff I wish I could forget. But you can’t really forget something that happens OVER AND OVER again. Like I’ve said before, even though this is my situation, my story and my lifestyle, IM SPOILED. ❤️
It’s a roller coaster. I have so many great and wonderful things to be grateful for. But at the end of the day, even though I wish for the impossible, I still dream daily of ways to be more physical and feel more like I’m LIVING and not just SURVIVING.
Just please remember and don’t let yourself forget that You’re not alone 💜 😘
Admiring my amazing tropical antacids. Odd fact: I prefer the off brand antacids in terms of taste and consistency, but ONLY wintergreen or tropical. Wintergreen I use with my peppermint oil (I don’t like peppermint antacids). Lucky for me, the generic brands are cheaper!
Let’s hope we can schedule my GI tests ASAP, so I can have some treatment options ASAP. This horrid pain is a bit much, so is the always feeling bloated thing.
Today every time I eat, I feel super full and nauseas, then I enjoy the horrible stabbing, and lets just say what you would think would be relieving is so not relieving.
Antacids, heating pads, epsom salt, oh my ♥️! #copingwithbehcets#behcetsdisease#autonomicneuropathy#positivevibes#gastroparesis#chronicnausea#gibehcets#neurobehcets#antacids
Not bad for so little inventory 😁 I stopped doing eBay months ago because it just wasn’t working for me. Virtually no sales, abhorrent listing process, especially compared to poshmark, and glitches beyond belief. I don’t know what made me want to try it again. Maybe it’s because posh has been SO STALE. But I’ve turned $15 into $147 in just a few days, so I’m very glad I came back 😜🎉
I have been feeling discouraged the past few days because fatigue has been at an all time high. I have been having difficulty dragging myself out of bed and to work by 9 am each day. (I am so grateful that I have a job with flexible starting and ending times!)
I feel like running has been increasing my nausea and fatigue, yet it helps give me energy and keep me stonger. I am frustrated with my faulty body, and looking forward to the day I get a new one. I am not going to stop running just because my body is not consistently cooperating, but some days it is so difficult to keep moving.
This verse about running and not growing weary has been in my head all day. I am so grateful for the years of memorizing Bible verses as a child. They always come to me when I need them most!
Late to my own challenge!So bad,I know!First off thank you to everyone who has participated so far-i feel like I’ve already learned a lot and made a couple connections-honestly interacting with so many of you and getting so much support with creating this challenge has been so encouraging to me and I can’t wait to get to know all of you better as the month goes on!Last 2 days I’ve been feeling so miserable but all the tags and shares of this #ChronicPainAwarenessChallenge has been overwhelming in a positive way-and thank you to everyone who has opened up who doesn’t usually about this stuff-you are all so brave and all your pain is validated and matters!Never forget that!So anyway,Day 1 is about #chronicpainconditions and boy do I have a lot!I developed #Vulvodynia , #Vulvarvestibulitis ,And #PelvicFloorDysfunction in spring of 2009-wasn’t till 2012 I got my diagnoses.The first two are nerve pain issues and PFD is muscle pain.I ended up
Having a surgery in 2015 for my Vulvarvestibulitis and thankfully it worked so I technically don’t have it anymore but
vulvodynia is basically the same kind of pain so kinda feels like it’s still here.I can’t remember when all my GI issues started but I’ve had two surgeries for my #chronichearrburn and #chronicnausea -2 surgeries because the surgeon screwed me up the first time around and so they had to redo the surgery.It barely even helped in the long run and made me develop #CRPS in my stomach that spread to my right leg thanks to an #EDS related injury.Last year I got diagnosed with #IBS , #POTS , and #EDSType3 all in one day and about 2 weeks later I got my diagnosis for CRPS.That was a lot to learn how to accept and come to terms with but God’s been gracious to me and has helped me learn to come to terms with them,but it’s a process and I’m still working on it.Ive done all the GI tests and the only GI diagnoses I have are #EOE and #GERD .I still deal with daily nausea and heartburn.If I could go back in time I never would have had that second surgery.It just wasn’t worth what I got out of it.Every GI dr I see doesn’t have answers for me so just have to deal with this.(continued in comments)