Interesting day. Interesting. 4 massages. Spinal stenosis with a foot drop in her background , L5 people, CMC arthrosis and a major lower back pain episode.
I am getting a lot lot of hypermobile people at work.
80% do not know they are hypermobile.
I use the beighton score.
Funny thing is being able to put your hands on the floor with straight legs is something we train towards in yoga. It is all context and function dependent whether you ' need' that flexibility or not.
I will be reading up on my hypermobile bodies. God how i just love researching.
A few years ago on the long road prior to obtaining my correct diagnosis of Ankylosing Spondylitis, I saw a rheumatologist who diagnosed me with hyper mobility (which I do have). He basically said it was my weight and my hyper mobility that was causing my pain. It took for my joints in various places to start swelling, and various different consultants, before I found a professor who carried out my blood tests for the gene etc, and pieced all the jigsaw together to finally diagnose me with Ankylosing Spondylitis. It can be such a long road to diagnoses. My hyper mobility means I can actually move parts of my body in weird ways and consultants previously were confused as to how I could have the pain I was referring to but able to stretch and twist. It shows that everybody is different and no one person is the same and has the same symptoms. My knees even now will automatically extend backwards due to my hyper mobility but I still can’t bend down on them or get into a bath easily. I am able to stretch down and place the palms of my hands on the floor (even with my big tummy) but I’m so stiff in the morning it’s ridiculous. Never judge a book by its cover. Sending my thoughts to you if you are managing your chronic illness everyday. It’s not easy but we truly must keep fighting and never give up 🙏🏻💞 #ankylosingspondylitis#ankylosingspondylitisawareness#ankylosing#arthritis#chronicillness#chronicpain#spoonie#spoonielife#spoonieproblems#spooniesupport#hypermobility#hypermobile#diagnosis#spooniewarrior#beightonscore
... #officeview for the better part of the afternoon / evening 🤕🖤 #chronicheadache#why ... invisible struggles are aren't any less real so if you're going through something it's 100% up to you to be open enough to get the help you need. Advocate for yourself ... peace out ✌🏼💕
2 2020 February, 2019
My geneticist actually used the form from the EDS website 😂
Basically my dad meets criteria but isn’t formally diagnosed and his mom is the same, and the geneticist didn’t see him so he can’t for sure check that but otherwise I meet so much of the criteria he said I could call it gHSD or hEDS, the difference is nonexistent because the one point that makes me diagnosed or not is literally detonated with a ‘?’ because I’m not close with my dad and don’t know his family history very well, I got as much info as I could from him. Also because of my fragility fractures that even my bad bone density can’t explain, he’s testing me for osteogenesis imperfecta because apparently a lot of people are undiagnosed if they have a more mild case and it can also cause hypermobility. I’ll find out about that in about a month. I was also informed that some people use gHSD and hEDS interchangeably and that I met old criteria and will likely also meet future criteria. So I guess I’m a zebra now? 🦓
2 3215 February, 2019
MIND BODY CONNECTION:
I often speak to my clients about “stability” when they have an area of the body that is hypermobile (moves more) or an area that is hypomobile (moves less). •Focused Breathing is just one ☝️way to start to connect the mind to our bodies movements • We can learn to control one ☝️ aspect of our body while we selectively move another •We may not be able to change our genetic make up but we can learn to work with the beautiful bodies we live in and embrace the powerhouse💥 from within us! #stability#mobility#hypermobilitysyndrome#beightonscore#ehlersdanlossyndrome#physiotherapy#core#control
Getting a high score on your tests isn't always a good thing. At least I passed and got an actual diagnosis, I guess..... https://rarediseases.info.nih.gov/diseases/2081/hypermobile-ehlers-danlos-syndrome
5 1224 January, 2019
Idag hos sjukgymnasten fick jag återigen reda på att jag har 9/9 poäng på beightonskalan och hen visade mig hur jag ska stå upp utan att få alltför ont. Galet att kroppen inte liksom kan det av sig själv.
2018 has actually been quite a difficult year for me. Although there were a lot of good things that happened including the best of all, getting engaged to Elijah who is absolutely amazing, it has been a very hard year in other aspects. This year I received my formal diagnosis in May. I have Ehlers-Danlos syndrome, which is a genetic collagen disease affecting multiple body systems and creating a wide variety of symptoms. While I have had symptoms for quite some time now, this year has been by far the worst. The collagen my body makes is too stretchy meaning many things for my body as collagen is found in connective tissue throughout the body. EDS comes with many accompanying problems for me including Interstitial Cystitis, Postural Orthostatic Tachycardia Syndrome, Chiari Malformation, multiple bulging discs, severe allergies, debilitating fatigue, migraines, uterine fragility, endometriosis, easy bruising, anxiety, depression, and many other things.
If you had told me when I was younger that this would be my life I wouldn’t have believed you. It is very hard to adjust to what I am able to do and what I’m not and come to terms that this is now my reality. I have had to quit working and most of my time away from school is spent at multiple doctor appointments, physical therapy, etc. It is also very difficult for me because the illness is virtually invisible. Many people close to me still don’t even know much about what I have or how it affects me. I never wanted to tell people how I was actually feeling because I didn’t want to appear weak or seem like I always complain so I would try to seem as normal as possible around others and quietly have my breakdowns around my mom or Elijah. Mom is always driving me to my appointments two hours away or Elijah helps me make food when I’m too weak to stand.
I didn’t want to post this photo originally because I forgot to put my cane down before it was taken, but this is my reality and in 2019 I would like to talk more about my illness and advocate for other invisible illnesses. Awareness and education about this, and other illness of this nature, is vital for our fight for treatment and recognition.
The Beighton score is a set of manoeuvres used to judge if there is evidence of joint hypermobility. There are 9 points, and a score of 4 or more is considered a sign of there likely being generalised joint hypermobility present.
It is important to note that the Beighton score is best used as a screening tool. Thereafter other sites should be examined for hypermobility, such as the temporomandibular joint, cervical spine, shoulders, thoracic spine, hips, ankles and feet.
Hypermobility should be looked for in anyone with mechanical joint pains or recurrent soft tissue injuries, including ligament and tendon strains and joint dislocations. It is a risk for musculoskeletal injury that is often overlooked.