About to start writing a blog on our experience doing the Tongariro Crossing but there are so many photos to chose from - although this is the only one that doesn't show the hundreds of others who were also doing the Crossing at the same time as us!
Sehrin kalbinde, bu sekilde onlarca buyuk park var ki, bu ulkenin dogaya verdigi deger ile havanlar ve insanlar bir arada mukemmel bir sekilde yasiyor. Sadece parklar degil, yasam alanlari bile dogayla ic ice. #auckland#newzealand#westernsprings
I’ve worried about whether Jayden has been enjoying himself during this week in Auckland but the last two days and in particular after last night I could not be more proud of the young man he is growing into.
He attended with myself, Ann, Vanessa, Jenny, John Foreman, Dan Peach, and our new friends from a research group in Japan dinner last night.
Before going I knew there would be talk about big subjects and he probably wouldn’t be overly interested, boy was I wrong. Not only did Jayden listen but he asked questions, he engaged with Kazu, John and Dan with interest and excitement. Jayden asked questions, shared his own story and showed a keen interest to learn and participate.
For a 14yr old who’s not been around my MPS world so completely before Jayden you were so very grown up and respectful and I’m so proud to say you are my nephew. #MPS#LDNZ#Auckland#NewZealand#LysosomalDisorders#raredisease#rare#conference#family#auntynephewbonding